Pain Management Archives - Unity Physiotherapy and Wellbeing https://unityphysio.co.uk/tag/pain-management/ Physiotherapy and Wellbeing in Lincoln Tue, 03 Feb 2026 20:41:35 +0000 en-GB hourly 1 https://wordpress.org/?v=7.0 https://unityphysio.co.uk/wp-content/uploads/2021/08/cropped-fav-32x32.jpg Pain Management Archives - Unity Physiotherapy and Wellbeing https://unityphysio.co.uk/tag/pain-management/ 32 32 Managing Pain and Fatigue Over the Festive Period https://unityphysio.co.uk/managing-pain-and-fatigue-over-the-festive-period/ Sat, 30 Nov 2024 11:16:25 +0000 https://unityphysio.co.uk/?p=5230 The festive period can be a wonderful time and a difficult one too for a variety of reasons for some people, including for people managing health conditions associated with persistent pain and fatigue.  These health conditions include: persistent pain, fibromyalgia, ME/CFS, long covid and PoTS.  If you live with one of these conditions, or another, …

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The festive period can be a wonderful time and a difficult one too for a variety of reasons for some people, including for people managing health conditions associated with persistent pain and fatigue.  These health conditions include: persistent pain, fibromyalgia, ME/CFS, long covid and PoTS.  If you live with one of these conditions, or another, you may find Christmas challenging or you may sail though it, many don’t.  I’m hoping there will be some information and tips in this blog that will help make the festive period easier to manage for people who are living with pain & fatigue.  As we move into the blog remember even a little change can make a big difference.

The festive period commonly brings with it a lot of stress, a variety of feelings and emotions, decreased routine and lack of sleep and other things.  These are are things that can turn up the dial on pain and fatigue.  Strategies/tools/practices that help to manage pain & fatigue in general, to manage stress and regulate our nervous system can be helpful.  Practices/tools that can support stress management and nervous system regulation include:

  • Breath practices
  • Mindfulness & Meditation
  • Self-compassion practices
  • Being mindful of our language & reframing it (watch out for the ‘shoulds’, more on this a little later)
  • Gentle yoga or other mindful movement practices
  • Somatic practices
  • Time connecting with nature

Commonly over the festive periods routines get thrown out of the window, people try and fit way more in than usual and more than they have capacity for, this is another reason symptoms increase.  There are different contributors to this including feeling pressure to do things a certain way, to do more & make everything ‘perfect ‘ at Christmas.   There’s no such thing as a perfect Christmas or a perfect anything for that matter, one of my wise sisters once said to me ‘it’s the imperfections that make us perfect.’  Christmas has become very over commercialised and there is quite a lot of unhelpful messaging that can make people feel they aren’t good enough unless the Christmas they have matches all the adverts and social media posts.  It can be helpful to remember that it’s only one day of the year and we can choose what we want to do on that day, it doesn’t have to be a certain way.

When managing any condition associated with pain and fatigue there needs to be flexible routine and pacing of activities.  By flexible routine I mean doing the things that support us each day though not in a fixed or prescriptive way.  For example, maintaining a sleep routine, eating food that supports health & wellbeing, pacing activities, using breath practices and other practices to support nervous system regulation, maintaining our boundaries, connecting with others and nature, and used in a way that meets what’s needed each day.

Sticking to your daily routine as best you can in terms of using the resources/practices that support you in managing the condition you’re living with is important, as well as setting some compassionate boundaries over the festive period.  Creating a flexible plan each day, prioritising and planning what you need and want to do, considering what’s realistic, what supports you, what’s meaningful to you, and consideration of what’s in the week ahead can all help with pain and fatigue management at anytime of year and is especially important with events like Christmas.

It can be helpful to explore our beliefs, expectations & our language, for example, noticing when we are we telling ourselves that we must do something, that we have to do something, that we should do more/should do something a certain way.  It’s quite likely that if you tend to overdo things that this language is appearing quite a bit, commonly there are a lot of shoulds (this comes from our threat system).  When you catch this language ask yourself where these come from & explore reframing the language.  For example, maybe reframing something from I have to do ‘x’ to I get to do ‘x’ and I’m going to ask for some help to make it easier.  Are your beliefs about Christmas supportive of your wellbeing & values?  It’s not always easy to reframe unsupportive beliefs, expectations and language sometimes support is needed to do this, especially when there is a history of trauma.

 

It’s important to know your toolbox of resources, knowing your resources and nervous system well can help you to choose which tools/practices are supportive each day, as well as bringing in additional practices to support you over the festive period as needed. It’s helpful to know what your energy nurturers are, what is restful for you and what regulates your nervous system so that these things can be included each day.  We all need rest and when living with a long-term health condition we need extra rest and more so if experiencing an increase in symptoms (often referred to as a flare-up).  The winter time is also the time we need more rest and the busyness that has now become a ‘norm’ of Christmas pulls us out of our natural rhythm with nature and our time for rest and restoration.

 

Things I see as foundational, are using mindfulness, self-compassion & listening to your body’s wisdom to guide management of pain & fatigue.  Mindfulness simply means being aware of the present moment, or being aware of our experience as we our experiencing it.  If we aren’t aware of what’s happening and how we are then how can we take helpful action?  The way in which we pay attention matters too, it is important that we are aiming to be compassionate and non-judgemental.  Turning a loving awareness towards ourselves is most supportive and it takes ongoing practice.  Being mindful of what’s present in our body in a compassionate way means that we can hear our body’s wisdom and we can use this to guide our choices.

Here is a summary of tips (there are more than I have written about above, the blog would have got rather long if I wrote a bit about each tip!):

  • Have a flexible daily plan
  • Have a flare up plan (what supports settling systems down)
  • Pace things in a way that supports you (5P’s to remember planning, prioritising, play & purpose, problems solving.  My blog on pacing for pain is linked at the end of this blog)
  • Take regular rest breaks
  • Check-in with your body regularly
  • Listen to your body’s wisdom
  • Practice self-compassion
  • Be kind to yourself
  • Remind yourself what you can do is enough
  • Include what’s meaningful each day
  • Connect to a sense of playfulness
  • Set compassionate boundaries (it’s ok to say no)
  • Communicate what’s possible
  • Ask for help when needed (asking for help is a strength not a weakness)
  • Use daily practices that support you
  • Use nervous system regulation practices (for example breath practices, meditation, mindfulness, yoga, somatic & embodiment practices, self-compassion practices, singing/humming)
  • Prioritise sleep, rest & restoration
  • Manage stress
  • Communicate with family & friends
  • Reach out for support
  • Connect with others & nature
  • Spend a little time outdoors each day if you can, or look out of the window & see what you can notice
  • Remind yourself Christmas doesn’t have to look or be a certain way
  • Explore beliefs & expectations, reframe them if it’s helpful & possible
  • Watch out for ‘I should…’, ‘I have to…’, ‘I must…’
  • Connect to a sense of joy, wonder, vitality and other nurturing feelings each day

The tips with this post can be helpful for us all and are especially important when living with persistent pain & other conditions.  You don’t need to do them all, trying to change too much at once often has the opposite impact, instead pick one or a few things that feel helpful for you and take action on them.  Maybe you have some tips you would add, I would love to hear them if you do.

It’s important for us all to remember there is no such things as a perfect Christmas & whatever we choose to do is ok and whatever we can do is enough.

Here’s the link to the pacing for persistent pain blog mentioned in this blog (a lot of what is in the blog applies to ME/CFS and long covid too, though pacing for these is slightly different): https://unityphysio.co.uk/what-is-pacing-how-can-it-help-with-persistent-chronic-pain/

 

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What is A Pain Specialist Physiotherapist? https://unityphysio.co.uk/what-is-a-pain-specialist-physiotherapist/ Fri, 28 Apr 2023 10:35:23 +0000 https://unityphysio.co.uk/?p=3959 What Is a Pain Specialist Physiotherapist & How Is This Different to MSK Physiotherapy?   Persistent pain (also known as chronic pain) is a specialist area/field in healthcare, it’s an area that I have specialised in and wanted to share a little on what this means.  A little background on physiotherapy training, following completion of …

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What Is a Pain Specialist Physiotherapist & How Is This Different to MSK Physiotherapy?

 

Persistent pain (also known as chronic pain) is a specialist area/field in healthcare, it’s an area that I have specialised in and wanted to share a little on what this means.  A little background on physiotherapy training, following completion of a physiotherapy degree physiotherapists take different paths, traditionally this always started with a junior rotational post in a hospital.  This now varies, on graduating a physiotherapist may start work as a junior rotational physiotherapist working in different areas within a hospital, or they may start working as a junior therapist within a community therapy team, or they may go straight into private practice on a graduate development program, usually this is within musculoskeletal physiotherapy.  Some physios work generically and others specialise in one area or a few areas, doing additional training and having the appropriate level of support and experience to develop a specialism, which is always ongoing.  Physiotherapists work in many areas, here are some of them: musculoskeletal (MSK), respiratory, cardiac rehab, neurology, paediatrics, care of the elderly, falls, learning disability, mental health, persistent pain, ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), long covid and palliative care.

Pain specialist physiotherapists have done additional in-depth training on top of their degree and usually have experience in a variety of areas.  Additional training includes exploring pain neuroscience more in-depth than at undergraduate level, psychologically informed practice training (includes integrating the core principles from, such as, acceptance and commitment therapy, compassion focused therapy and cognitive behavioural therapy), other pain related training and other related training including coaching.  They keep up to date with the evidence base on pain and understand the many myths that exist within healthcare and society about pain and the impacts of these.  Pain physios usually have many years experience of helping people learn to live well with pain and change pain too.  They value, listen and learn from the lived experience of those they work with and the wider lived experience community.

Pain physiotherapists use a whole person centred biopsychosocial model (many use a biopsychosocial-spiritual approach – this includes what’s meaningful and gives purpose) and take a holistic/integrative approach to care.  We aim to understand the whole person and their world and hold a compassionate non-judgmental space for understanding and hearings someones story/journey and to support exploration.  We encourage people to build compassionate self-awareness and to hold a curiosity and a willingness to explore what may be helpful and supportive for them.  Pain physiotherapists aim to empower people, for example, to be able to engage in what’s meaningful and develop a set of strategies to help manage and change pain.  We help people to be able to fully engage with life again and what’s most meaningful.   We work closely with other professionals involved in someone’s care, such as a psychologist and occupational therapist.

Pain physiotherapists understand that pain is complex and multi-faceted and that’s linked to the fact human beings are complex, this is why we have often done a variety of training exploring the different areas of being human.  Each pain specialist physio works by integrating all their knowledge and skills in a way that is blended with the knowledge, skills and experiences of each person they are working with, creating individualised care.  Each pain physiotherapist works a little differently as they integrate their knowledge, unique skill set and experiences into their work.  No one therapist has the same knowledge, skills and clinical experience, just as no-one person is exactly the same.  It is important to mention that we all follow the Chartered Society of Physiotherapy (CSP) guidelines and those of the Health and Care Professions Council (HCPC).  When using knowledge and skills that don’t class as physiotherapy (according to what is set out by the CSP), we adhere to the best practice within those professional guidelines as well.

 

How To know if Someone Has the Relevant Knowledge, Skills & Experience?

 

Read what qualifications, training & experience they have on their website and if it’s not available to read on there its ok (and I would recommend it) to ask.  It is ok to ask what someones experience and background is.  Some therapists will offer a free short call, I do this, one reason being it helps people decide if working with them feels potentially helpful.

 

My Knowledge, Skills & Experience In Persistent Pain

 

Following my junior rotations in a hospital I chose to specialise in neurology and persistent pain and over the years have done many trainings, lots of reading, had support from more experienced clinicians and worked with many people with persistent pain.  I have worked in chronic pain for over 14 years, in the last 3-4 years I’ve stopped my neurology work and transferred this specialism to being a special interest in working with people with ME/CFS, long covid and PoTS, alongside still working with people with persistent pain.  One of my roles has been working as an advanced practitioner physiotherapist in pain, I did this for 4 years alongside my private work.

Here’s some of my training:

BSc (Hons) Physiotherapy

Life coaching qualification

NLP practitioner training

Yoga teacher training (200hr)

80hr trauma-informed yoga and embodied resilience course

Two weekend yoga courses for physios taught by physios who are yoga teachers

8 week psychologically informed practice course with the Physiotherapy Pain Association

Compassion focused therapy (CFT) for healthcare professionals 2 day course

8 weeks CFT training

A few different ACT courses up to intermediate level

Pain coaching course

Explain pain course

Graded motor imagery course

Functional nutrition & chronic pain certification

The above list is a small percentage of the training I have done, there has been a lot more training and reading over the years in addition to what is listed above.  There is other training related to the special interests I have in ME/CFS, long covid and PoTS, and the yoga and coaching parts of my work.

Remember Chronic Pain/Persistent Pain Is a Specialist Area

 

Chronic pain/persistent pain is a specialist area and it it important that when people are struggling with persistent pain that they see clinician(s)/therapist(s) who have knowledge, skills and experience in this area.  Persistent pain includes many diagnoses including fibromyalgia, chronic low back pain, chronic headaches, CRPS, and many others.

This wasn’t the easiest thing to explain in a short (ish) blog post but hopefully it makes sense and you can see the value in seeing a pain specialist physiotherapist  or an MSK physio with a special interest in persistent pain.  Remember it’s ok to ask what someones background and experience is in working in chronic pain.

If you need help with persistent pain and would like to see if I can help please get in touch to book a free 15 minute call to discuss.

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My Journey with Persistent Pain https://unityphysio.co.uk/first-blog-my-journey-with-persistent-pain/ Tue, 14 Sep 2021 09:06:14 +0000 https://unityphysio.ebc-designs.com/?p=866 Here it is, my first blog! Some years ago I decided to start writing blogs and set up a blogs page on my website and that’s as far as it went. My first blog is my story with pain which led me to specialising in treating people with going pain. My blogs will be mainly …

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Here it is, my first blog! Some years ago I decided to start writing blogs and set up a blogs page on my website and that’s as far as it went. My first blog is my story with pain which led me to specialising in treating people with going pain. My blogs will be mainly related to persistent pain and everything it is to be human.

Like me you may be interested in persistent pain and hearing stories from those who experience it or have done. I ended up specialising in pain professionally because of my own experiences and seeing there was far more to pain and helping others make changes than we were taught at university.

I always said my first blog would be sharing my story so here goes. Settle back with a cuppa, it’s a longer than intended blog. If you don’t make it quite to the end remember to read the summary before you go. I can’t guarantee all of you will find this interesting and useful, I hope that you do.

I have had persistent pain for around 22 years, for some of this time I struggled with it. When I was struggling with pain I felt like I was surviving rather than thriving, this really continued until I learnt a lot more about pain (this is complex!), living well with pain, developing more practices that looked after my wellbeing and helped to change pain whilst allowing pain to be in the background. I believe my experiences and learning have helped be become the compassionate integrative therapist I am today. The pain is nowhere near as bad as it was and it does not stop me doing what is most important to me anymore, I am thriving rather than surviving.

With persistent pain there is always a story, so where did it all begin?

There is evidence that adverse childhood events affects health in later life, this is where my story begins. I was bullied for all of my teenage years, throughout secondary school and a little before this too. This was psychological bullying by large numbers of people on most if not every day. My Grandma always used to say ‘sticks and stones may break my bones but names will never hurt me’, sadly this is not the case. I left school with no confidence, self-belief or self-esteem, and would not go out on my own.

I didn’t appreciate how much of an affect this was likely to have had on my health and wellbeing until I reflected on it in the last few years, the more I have learnt my understanding has deepened. I think it is likely that this is where the issues started, there is also likely a genetic component to things based on some family health issues.

How did I interact with the world on leaving school?

Not much if I could help it, I often wanted to stay hidden away like that clam shell buried in the sand for safety yet this is not what I did as long as some of the sand came along too. Gradually I needed less of the sand to come along with me. For many years if people were laughing they were of course laughing at me, no matter how many times I was told by those close to me they wouldn’t be I didn’t believe them.

I had a flexed posture and looked down most of the time, this was a posture of protection and disengagement. The evidence doesn’t generally support correlation between posture and tissue damage yet it is important for things like self-awareness and our interaction with the world.

The journey with pain, health and wellbeing

The first thing that happened in terms of health changes was developing gut issues, this was after a holiday and was around the time of either GCSE’s. It is most likely the stress from being bullied contributed and the exams, who knows if there was something consumed on the holiday that did too. This was eventually diagnosed as IBS, at this time it was thought to be caused by stress and although this is a factor it is not the only factor. I feel we over medicalise things and there are too many labels within healthcare today, for example why do we still feel the need to distinguish between psychosomatic and mechanical pain. All pain is really both seeing as all systems that make us one work together, maybe (and that is a maybe) you could argue acute injury is solely mechanical yet it has psychosocial factors involved too (I would argue it isn’t solely mechanical and believe nothing is). Why do we label in this way and allow the stigma attached to psychological aspects of pain to still be prevalent.

When I was about 18 years old I started to have problems swimming due to shoulder instability, one of my shoulders was persistently subluxing. I was told I had multi-directional instability in both shoulders, my non-dominant shoulder was the one that was subluxing. I saw a lovely and very honest shoulder consultant about 11 years ago who said the surgical option was capsular shift surgery, which he advised could possibly solve the problem for a while but could be more of a problem in the future. Another consultant may have presented this surgery differently (I had only just qualified at the time and had limited knowledge about this surgery). It was interesting listening to a video by Jo Gibson, Shoulder Specialist Physiotherapist recently, she could have described me when she discussed how a group of instability patients have been identified by The Stanmore Group to have their shoulder pulled out of joint by pecs, deltoid and lats, which is what my pecs and anterior deltoid used to do.

I first hurt my back at work, around 20 years ago, at this point in my life I was working in a bank. I had Chiropractic treatment for both which helped to an extent. I later had physio, which helped a lot, and inspired me to become a physio.

What happened next?

About 5 years later I started my physiotherapy degree, 11 years down the line it is still a job I love and am passionate about. At the time I started studying I intended to work in sport, during my student rotations I developed a love for Neurology and my plans changed! Later down the line as a junior physiotherapist I started exploring pain, I thought there was more to it than I was taught, I became more and more interested in it and helping people struggling with ongoing pain.

During studying my shoulder became more of a problem, I would often finish a day on placement struggling to get changed as my shoulder range had significantly reduced, often my shoulder was subluxed. When not on placement I would drive home from university (an hours drive) and often had to lay on the floor once getting home to try and get the tone in pecs to drop and get my shoulder back in alignment. When I treat patients with shoulder subluxations now I understand the amount of pain this can cause. I made it through my degree and acute work as a physiotherapist, it was challenging as my shoulder really didn’t tolerate load. I kept on going and pushing through the pain and ended up with an even more sensitised nervous system and at some point with neuropathic pain, this may have been whilst studying or later my memory of that is not clear.

About 7 years ago I took a senior role in a specialist community stroke team, during the time I was struggling with my shoulder and arm pain, I could sometimes be found lying on the floor which I only resorted to when my shoulder was subluxed and I had neuropathic pain. At the start of working in this team I had a car accident which resulted in a whiplash injury, dizziness/imbalance and headaches, so that added something else into the mix. After about three years of working with this team I hurt my back at work, I had severe lower back pain and distal neural symptoms (pins and needles). Did I stop? No, I hadn’t learnt, I kept on going and pushing through the pain, there was a bigger threat to me in going off sick and so I just told myself I would be ok. A month or so passed by and I finally went to my GP as I wasn’t sleeping because the nerve pain and pins & needles were worse and keeping me awake. Catch 22, lack of sleep increases perception of pain and pain inhibits quality sleep. The medication helped to an extent and on I went until I reached a point where something snapped (not literally!), I spoke to my manager and told her I couldn’t do it anymore I needed to go off sick. You may be wondering why I kept going, I knew that I needed to calm things down and pushing through things wasn’t helping. The bigger threat was that I had previously had a few months off with shoulder and arm pain, when the pain was so unbearable that changing gear was very painful and I could take hardly any load in my arm and sometimes none, this unfortunately later caused issues with a colleague. It is not something I will go into partly for professional reasons, it was in essence bullying in the workplace. This threw me spinning back into lots of self-doubt, my confidence plummeted, I noticed some old patterns resurfacing, and I hated going to work (something that is very rare in my life as a physio). Before my back injury things with this work situation had improved to an extent though were not fully settled so I was worried what would happen if I took time off.

Somewhere along the line I developed fatigue, not the ‘I’m tired it’s been a long week’ sort of fatigue but the sort of fatigue that is all encompassing. I often found concentration hard and wasn’t great at remembering things. Sometimes I got home and had to lay on the floor until my energy levels improved, that’s if I wasn’t needing to lay on the floor to settle my shoulder back into joint anyway! This is hardly surprising with the daily stress throughout secondary school and the affect this will have had on the HPA axis amongst other things. I was functioning in flight and freeze responses a lot of the time at school and for a long time afterwards, my nervous system was on high alert. Thankfully I don’t have this all encompassing sort of fatigue anymore.

I stripped my life back to not doing anything I loved, I knew better than this and yet still did it as could see no other way at the time, I wasn’t interacting fully with my world again. I lost a lot of exercise tolerance and there was sensitivity to a lot of movements and activities. I couldn’t walk down the road for 5 minutes without a significant flare in symptoms. I used my own knowledge and skills, those of colleagues, and lots of love and support from family to gradually make changes. I gradually started to do things like this again, there were times when I couldn’t do it all and I noticed it annoyed me until I came to a place where I realised if the house wasn’t tidy it didn’t matter. I chose what to focus on instead of being annoyed at what I couldn’t do I focused on being grateful for what I could do and I learnt to ask for help. When things like doing the housework felt like climbing a mountain I did what any good mountaineer does and I made a start, I learnt to navigate more effectively with experience, including resting along the way.

Having built things up and calmed things down a lot I fell down the stairs and fractured my wrist and had surgery more on this in the what happens when your dominant hand out is out of action later. The headaches turned into migraines during the recovery from the wrist injury and surgery, about 7 months after, hardly surprising with everything that happened during this time. These were diagnosed as chronic migraines by a Neurologist who said the only way forward was medication. On discussion he agreed to let me try and change things without medication first, with a look of that’s unlikely to happen. Two months later they were downgraded from chronic to episodic, more labels, and now they are mainly headaches not migraines although I do get a few.

I understand what it is to not be listened to by medical professionals to be made to believe pain is in your head, and to feel like it’s your fault. Professionally and personally I know that this is not the case but that didn’t always help, and in the early stages of the journey I wasn’t a physiotherapist and didn’t have this knowledge. Pain is never all in your head and it is always real, brain and body are one and neither functions independently of the other.

Are decisions easy?

Some are and some aren’t! I didn’t want to go back to work in the NHS team following my back injury, this created anxiety which i initially got hooked up in. Lots of things went through my head: what will my colleagues behaviour be like, how will I cope with the load demands, and other thoughts. I decided to resign and build my private work up and my strength and fitness at the same time. This decision felt right, all my family were behind me which helped, even if they were a little worried if things would work out. It wasn’t easy, yet I had more control and was able to adapt things without any workplace issues to contend with. I could finally calm things down and modulate the load demands. I returned to what I loved doing outside of work, gradually the back and shoulder pain changed and my shoulder no longer subluxed, I got fitter, and then I fractured my wrist!

What happens when you can’t use your dominant hand?

In my experience dependence and frustration initially, learning to do things another way, adapting, and asking for help to name some significant things. I had just got to the stage of maintaining my shoulder range with some load and ready to start loading the arm more including overhead prior to this. The fracture was both radius and ulna with the radius fracture being a little displaced, it resulted in radial plate and carpal tunnel decompression a week later and later down the line working to reverse CRPS! I also had coccyx pain for some time after this possibly a year or more. I was having issues with the other shoulder and neck, the side I fractured my wrist on, and before the fracture I was going to get a colleague to help with this. As you can imagine by the time I got treatment for this the wrist injury and disuse of my arm had impacted it too.

The time between injury and surgery was rather stressful. The A&E staff were fantastic and caring, although the overnight stay on the ward was not a great experience and my pain was poorly controlled by medication. I had been told it was definite surgery, however the next morning the Consultant said there was a 30% chance of this and was sent home for review in fracture clinic 2 days later. My knowledge had me questioning, I reached out to an Orthopaedic Consultant at another hospital who was concerned they were doing nothing, he advised the minimum needed was manipulation under anaesthetic. The care felt disjointed and compassion was somewhat lacking at this point. When I went for my review two days later the notes were still on the ward, we had to wait nearly two hours whilst they were located, following another x-ray I was told the fracture had further displaced and needed surgery. I ended up with surgery at another hospital, this was my choice. This team arranged surgery the day after they saw me due to the worsening neural symptoms, this team’s communication was effective and reassuring, I had complete trust in them which can never be underestimated. Whilst awaiting surgery I was trying to notify patients and find someone to cover for me whilst off and do a handover of patients. Being self-employed I had no sick pay, so applied for Employment Support Allowance, this later turned out to be very stressful and gave me an insight into what patients have to deal with. Lots of factors were ramping up the threat of this injury to me, which I was counteracting to an extent with yoga and meditation.

Two days post op my thumb swelled significantly and was so sensitive I couldn’t touch it, it was the sort of sickening pain where you don’t know where to put yourself (if you have ever experienced this you will know what I mean and may even have a visceral reaction to this right now!). I sought the help of a private physiotherapist colleague at this point who was able to help calm things down by targeting the neuro-immune system.

Long story short, myself and the Consultant thought it likely the plate was irritating, this was about 6 months post op, but as there was no way of knowing we agreed I would sit it out longer. Around 14 months after injury the plate was taken out, I no longer had any signs of CRPS by this point, and things were evidently different within a few days of surgery despite the acute post op pain. With patience and persistence, I have got back to a fairly high functional level with my hand even though I still have pain.

I developed a depth of understanding with patients that have their arm function taken from them overnight, although every experience is individual. Overnight I went from being independent and working to being dependent and not working. Everything was hard and things were frustrating as I couldn’t use my dominant hand. I learnt to write left handed, and even filled in the Employment Support Allowance form left handed as I was determined to not keep asking for help as what I could do myself was pretty limited. To feel like you have no purpose and be completely reliant on others for many things once taken for granted is a place of deep learning or it was for me.

I practiced yoga every day and used visualisations for movements I couldn’t do, went for walks, and I read. I integrated my Neuro Linguistic Programming (NLP) and coaching knowledge and skills and became aware of what I was saying to myself. Also, when I noticed my accuracy of recognition on my right side had shot down to 60% I started using NOI’s left/right recognition app, I tried mirror therapy prior to this but it was irritating at this stage but was useful later. This was around the time of realising I was developing CRPS.

What changed?

Did the pain fully go away? The pain has significantly changed, it used to be a at the forefront, it was in the driving seat. It is no longer the pilot and it’s not even co-pilot it’s a passenger, it is quieter and I do not resent it or the experiences that have contributed to the persistent pain state. Sometimes it starts to shout and now I do listen and can quieten it again. One day it may fully go away or it may not, either way I plan on keeping doing everything I choose to.

How did things change?

Things are dynamic and always changing so in some ways not doing anything was needed to make changes. However, to make lasting specific changes it took: the unconditional love and support of close family and friends; daily practice of gratitude, self-compassion, patience and perseverance; awareness practices including of behaviour and thought patterns, daily meditation and yoga; returning to exercise (the gym, yoga, swimming, walking); and doing the things I loved including photography, walking and writing. I didn’t used to be a gym kind of person, partly because I never felt confident there and they tend to be quite noisy which is something I can be sensitive to, I now enjoy it (another example of how things can change in life).

When I went back to swimming and joined the gym I could swim 4 lengths and that was enough, I could do a up to 5 minutes on the cross trainer and bike and not a lot else. I gradually built things up and went to yoga and practiced at home. When I rocked up for my first yoga class, in rather a lot of pain including neural leg/foot pain, it turned out to be the teacher whose class I went to for a little while 10 years prior to this. She had also known my Grandma and tried to help when she was ill with cancer. The classes were immensely helpful to me and played a big part in my healing, I have practiced yoga on and off the mat daily ever since. I now integrate yoga into my physio practice from my own practice and short courses done with two physiotherapists who are also yoga teachers.

I was told at one point by a colleague that I was not stable enough to use the cross trainer. This is when I was getting more neural symptoms during and after using it. I chose to ignore this advice, mainly because by this point I understood pain differently and in greater depth and knew that it was sensitivity not stability that was the issue. I kept on using the cross trainer to the point of the pain alarm going off, being aware of my body tension, breathing and thoughts, and kept gently nudging the barrier. I also knew if I stopped using it I couldn’t replace the cross trainer with something like the static bike as I didn’t particularly enjoy it and felt the rhythmical movement on the cross trainer was helpful, now using it is not a problem. We have to be careful not to keep taking things away from people, especially when they are often already restricting things themselves. A patient once said to me they really wanted to walk one of their dogs and said bet you will tell me not to, I said you absolutely can. Instead of saying no I advised them to take the dog they most trusted for a short walk, maybe a few minutes down the road and back and then build gradually from there, the smile and reaction have stayed with me.

Along my journey I realised fluidity and ease of movement had put themselves in a locked suitcase somewhere and I didn’t know how to access the lock. Through breath and body awareness practices, yoga, pilates and swimming I found this key. I now swim a mile a few times a week and get to the gym a few times as well when time allows. Swimming is something for me that is calming, it’s a great mindful activity and it reminds me of my Grandma who was a swimming teacher. Swimming is something I grew up with and all of my close family love it and are great swimmers. I often smile as I can hear my Grandma saying ‘hands!’ when I’m swimming backstroke. A fitness professional said how amazing my backstroke was last year and not many can swim it that way, this was lovely to hear especially as I was near the end of my swim at the time and fatigue was setting in and because it meant the fluidity I felt was also observable.

I trained as a NLP practitioner in 2012, this was an amazing personal journey and one that became a new way of life. I then trained as a life coach which built on the NLP training, both have helped me change my life and those of others. We need knowledge and skills from things like coaching as physiotherapists.

The good news is the shoulder that used to sublux is about 90% better, it didn’t get better until I left the NHS likely because a lot of the work was heavy and my body was not coping with load which it now does. I still have a sensitive gut, get some sciatic pain and back pain, pain in carpals and wrist from the fracture and have yet to fully settle my shoulder and neck on that same side although I am confident that I will. I had physiotherapy for the wrist fracture and surgery and integrated my own knowledge and skills to get to the level things are now.

After the wrist fracture a physiotherapist I had connected with on social medial reached out to me to offer support, thank you Shelly. I have never met Shelly even though in some ways I feel I have. This gesture of support was important, it was an extension of compassion, and understanding as Shelly knew what it was like to have a significant injury and be a physiotherapist. Connections and social support are an important part of healing and our ongoing wellbeing.

Previously being a physiotherapist has defined me, or so I felt and I didn’t know who I was if I wasn’t a physiotherapist. There have been two injuries, back and wrist, where I have wondered if I would have to change career. This was especially the case with the back injury, I was catastrophizing a bit at this point in time! It worried me at the time, yet when I wondered again about my career some time after the wrist fracture and the first surgery I was no longer worried, I had realised being a physio did not define me.

At the end of last year I came to a realisation that my body hadn’t let me down and I knew I trusted it again. I could see it had never let me down it was simply my perception at the time and for some time to follow that it had. I am fitter now than I was 10 years ago, this quote springs to mind ‘it’s not the years in your life that count it’s the life in your years.’

Do I hold regret about how I have chosen to handle things, not in the slightest as I know I made what I perceived to be the best decisions at the time. Do I wish it hadn’t happened to me? Yes, on one hand as there has been rather a lot of pain yet on the other I wouldn’t be where I am or the person I am. I now see things differently, I see many more choices and I don’t see things as mistakes or blame myself, the best intention is always even if it does not result in what I envisaged. Am I bitter towards those who bullied me? No and I have forgiven them and myself (as you may have gathered I was beating myself up for a while).

The person that was once a clam shell wanting to stay buried in the sand for safety is now a dolphin gliding and swimming, playing and connecting. To reach the confident (mostly) and resilient person I am now it has taken around 20 years! I do sometimes still beat myself up yet recognise it quickly and chose a better and more helpful way to be!

In summary

I hope you take something from reading this, whatever you take will be up to you, and well done if you made it this far! Pain is multifactorial and needs a biopsychosocial approach, it seems the bio gets thrown out by some or others keep it as the focus and others have found an in-between and tailor the biopsychosocial to the individual. We know from the research that trauma, which includes bullying, especially in childhood contributes to persistent pain. The old structuralist view is outdated and a very small part of the picture (remember I didn’t stop using the cross trainer and got better).

If I knew 22 years ago what I now know I may not have pain now who knows, equally I would not be who I am today so for that I am grateful. The reality is we are always building and rebuilding or extending, yet the foundations are always there. The foundations are our core or essence, or what it is that makes you you, it’s a powerful thing to understand. When pain persists it is important to integrate making changes into life, keep hope yet without doing things just to change the pain as that keeps pain as the focus, and not put life on hold until the pain changes (change usually takes some time and restricting things can help keep the pain more prevalent). Ultimately please remember things can change with many things, some key things are time, patience, perseverance, compassion, connection and love (both love for yourself, from others and doing the things you love too).

Watch out for the next blog coming soon, it will be shorter! I will leave you with a life philosophy which I wrote when invited to write a short statement on the filter we push things through on a pain coach course at the end of last year. It evolved very quickly, which likely means it was unconscious and I was in flow when I wrote it. It shows me how much has changed, I now choose love not fear. This is stuck on my fridge door:

‘To create and experience life through connection and love, to learn and grow with presence.’

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